Summer is Here!

Summer came on strong in Indianapolis this weekend and we finally got Gracie out to play. She loves her swing of course and is working on using her stroller. Backwards seems to be the direction of choice. The first two pictures are after breakfast. The mark on her forehead is not a bruise, but a blueberry that missed the mark!

Back on the Leash

Grace may be going home today, but at looks as if she will be back on the leash (ventilator and oxygen). we had enjoyed being free from all the paraphernalia, but she seems to need the ventilator at night and a little oxygen during the day. We are trying to convince the docs that we can wean her ourselves at home. If so we can he fully bounce out of here later today.

On a sadder note, Grace lost her great-grandmother Margie this week. She was 89 years old and passed peacefully in hospice surrounded by family. Luckily grace visited with her about 10 days ago and got to see her before she passed. We will miss you Margie.

Close But No Cigar

We thought we might be coming home today.  Gracie was doing much better and they took her off CPAP (ventilator) last night.  Unfortunately her oxygen requirement went up by morning and she had to go back on the vent for a while to rest her.  Looks like another day or two at Riley before we can get her home.  Fingers-crossed for Saturday!  The little lady herself is doing well.  She is cheerful and rambunctious and making friends with anyone who will come in her room.  Her parents on the other hand are tired and cranky and would like to go home thank you very much!

Turning the Corner

Grace is looking much better today.  Up and playing with Mrs. Potato Head.  She is still on the vent, but doesn't seem to be having anymore fevers.  Her oxygen requirement is down and hopefully we can get her home in the next few days if the vent can be weaned.  Deb has been staying at the hospital at night and is exhausted.  We have a feeling that Grace may be back on the vent, at least at night, for a while.  More tomorrow.  

Dagnabbit!

Well, this is not what we had planned for our weekend. Gracie started coming down with a cold on Saturday, and by Sunday morning she was starting to drop her oxygen levels and having trouble breathing. So that meant a trip to the ER on Sunday morning. FYI, if you must go to the ER, Sunday morning is the time to go. Not a soul in there practically, except for us. So Grace got some breathing treatments and was admitted to the pediatric ICU where she was placed on a ventilator. Presently she is still on the vent, and running a low fever. They feel it is a viral respiratory infection at the moment and Grace has such little reserve that her little lungs just can't handle it. She is requiring a lot of oxygen and is very uncomfortable We will keep you posted as the situation develops.