Grace's new hat. 
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Formerly "Born Unto Trouble..."
Welcome
This humble little blog is for family and friends to track the progress of our little Grace born early at 26 weeks with an omphalocele and Beckwith-Wiedemann Syndrome.
I originally named this blog "Born Unto Trouble" after a quote from Job 5:7 that my father continually reminds me of during challenging times: "Man is born unto trouble as the sparks fly upwards." -Job 5:7
We have since renamed it after a poem by James Fenton: For I Was Born To A Kiss And A Smile ..." Also provided by my father, and much more appropriate to express the joy we feel in having Grace in our lives.
Please follow her progress with us. Your comments are welcome and enjoyed. Subscribe to the RSS for easier updating.
Mon Sep 08 19:26:00 EDT 2008 |
I originally named this blog "Born Unto Trouble" after a quote from Job 5:7 that my father continually reminds me of during challenging times: "Man is born unto trouble as the sparks fly upwards." -Job 5:7
We have since renamed it after a poem by James Fenton: For I Was Born To A Kiss And A Smile ..." Also provided by my father, and much more appropriate to express the joy we feel in having Grace in our lives.
Please follow her progress with us. Your comments are welcome and enjoyed. Subscribe to the RSS for easier updating.
Mon Sep 08 19:26:00 EDT 2008 |
2 comments:
how cute!!!
Hi! My name is Kristen and I just found your blog on a google search for BWS blogs so I thought I'd say hi. My 10 month old son Jack also has BWS. I have a blog too...
www.thethingsimlearning.blogspot.com
we are also on the yahoo family forum :) Your daughter is beautiful!! It is so great to see other blogs of other BWS families!! God bless!!
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