We are now at 20 weeks. Deb is feeling well, although I think she is understandably nervous. Today we visited with a pediatric cardiologist for a fetal echocardiogram, the high-risk OB, and a pediatric general surgeon. So far everything is good news. The heart looks normal so far. Growth appears to be on target with no obvious abnormalities. All in all, very promising that the only abnormality is the omphalocele.
For your viewing pleasure, we have a short 3D ultrasound of the little one's face. She is hiding behind her arms a lot, but you can catch a glimpse every now and then. We have some regular ultrasound footage too, and pictures that I will post later. Thanks for checking in!
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Formerly "Born Unto Trouble..."
Welcome
This humble little blog is for family and friends to track the progress of our little Grace born early at 26 weeks with an omphalocele and Beckwith-Wiedemann Syndrome.
I originally named this blog "Born Unto Trouble" after a quote from Job 5:7 that my father continually reminds me of during challenging times: "Man is born unto trouble as the sparks fly upwards." -Job 5:7
We have since renamed it after a poem by James Fenton: For I Was Born To A Kiss And A Smile ..." Also provided by my father, and much more appropriate to express the joy we feel in having Grace in our lives.
Please follow her progress with us. Your comments are welcome and enjoyed. Subscribe to the RSS for easier updating.
Mon Sep 08 19:26:00 EDT 2008 |
I originally named this blog "Born Unto Trouble" after a quote from Job 5:7 that my father continually reminds me of during challenging times: "Man is born unto trouble as the sparks fly upwards." -Job 5:7
We have since renamed it after a poem by James Fenton: For I Was Born To A Kiss And A Smile ..." Also provided by my father, and much more appropriate to express the joy we feel in having Grace in our lives.
Please follow her progress with us. Your comments are welcome and enjoyed. Subscribe to the RSS for easier updating.
Mon Sep 08 19:26:00 EDT 2008 |
3 comments:
Just wanted to let you know that I'm praying for you and your beautiful baby girl. Our daughter was also diagnosed with an omphalocele before she was born.
I want to incourage you to check out a beautiful group I work with www.prenatalpartnersforlife.org. Check out the beautiful stories of HOPE and order your princess a free lamb. Sent with a prayer of healing and hope.
I didn't know Baby Williams was a girl! We are looking forward to meeting you, little baby! There are already so many people who love you and care about you. Grow big and strong for 20 more weeks, then come meet your wonderful mommy and daddy!
What an incredible age we live in! Imagine being able to see your grandchild so early, so clearly and from a distance. There is something about seeing the little one move around that is so amazing (sought for words - but the right ones escape me!).
Lots of Love to you All. Keep the good news coming. Love Mum XXXXX
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