Grace had a visit from her Uncle Hamish this weekend. We think she has a little crush on him. She will sit with him and take her entire bottle when she feeds. For us she only takes about a half a bottle before she gets bored. Hamish was also a third set of hands when we took Grace on her first outing. We went to the Broad Ripple Arts Fair. Grace seemed to enjoy herself, and we only stressed out a little bit. We need to do more outings with her so that we can get more efficient at transporting all her gear. Luckily we didn't forget anything crucial and there only a few melt-downs along the way (mostly me).
On the down side, Anthem has denied our home nursing help. This is a huge problem, so now we are going to have to appeal. Puts a lot of stress on Deb in particular. Have I mentioned how much I hate insurance companies.
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Formerly "Born Unto Trouble..."
Welcome
This humble little blog is for family and friends to track the progress of our little Grace born early at 26 weeks with an omphalocele and Beckwith-Wiedemann Syndrome.
I originally named this blog "Born Unto Trouble" after a quote from Job 5:7 that my father continually reminds me of during challenging times: "Man is born unto trouble as the sparks fly upwards." -Job 5:7
We have since renamed it after a poem by James Fenton: For I Was Born To A Kiss And A Smile ..." Also provided by my father, and much more appropriate to express the joy we feel in having Grace in our lives.
Please follow her progress with us. Your comments are welcome and enjoyed. Subscribe to the RSS for easier updating.
Mon Sep 08 19:26:00 EDT 2008 |
I originally named this blog "Born Unto Trouble" after a quote from Job 5:7 that my father continually reminds me of during challenging times: "Man is born unto trouble as the sparks fly upwards." -Job 5:7
We have since renamed it after a poem by James Fenton: For I Was Born To A Kiss And A Smile ..." Also provided by my father, and much more appropriate to express the joy we feel in having Grace in our lives.
Please follow her progress with us. Your comments are welcome and enjoyed. Subscribe to the RSS for easier updating.
Mon Sep 08 19:26:00 EDT 2008 |
2 comments:
Tim, I deal with insurance companies on a daily basis for prior authorizations for medications. Make sure to use the phrase, "detrimental to the patient's health". This is usually a sure fire way to get it approved. Sorry to hear you have to fight for something you need.
Thank you for the continued updates and I'm sending our love to you all... Julie Chancellor
You may also want to reiterate that a home health nurse is far less expensive than yet another hospitalization.
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