Updates

Grace continues to thrive this summer. She is a delightful little girl with a surprisingly sweet disposition despite all that she has been through. The only time she seems to get really irate is if she is not fed on time. Actually, lets make that not fed early. We are trying to stretch her out to four hours between feeds. I would guess she makes it to about 3 1/2 before becoming hell on wheels. Other than that she prefers to be held and talked too but not left alone. Do all these things and she is an angel. Waiver from her plan at your own risk!
She has been to the local pool already. She frequently goes on walks with Mac (our dog), and she works hard on her therapy. She is starting to reach for things a little and we are working hard on unsupported sitting. Standing seems to be a favorite activity and of course bouncing is big fun as well.
Medically she is holding her own. Not a lot of changes and no plans to fix her omphalocele or wean her off her vent/trach yet. It's a time to grow right now.

Grace and Grandma Ellen

Lounging Poolside

Cool Shades!

Grace writing her blog