Foiled Again

Friday, March 20, 2009
We are home without Grace tonight. She remains at Riley Hospital. Unfortunately she had a rough night last night. She was having a hard time breathing and they put her back on CPAP to give her a bit of a rest. This means she won't come home this weekend and may not come home until early next week. Tentative date is Tuesday.

Essentially they will have to solve the breathing problem or at least give us a way to manage it at home. As you can imagine, not much will happen over the weekend so we will just have to see how she does and what plans are going to be made. She may also get some further studies to see if she is having reflux or something else that is causing her breathing problems.

Ironically, she looked fantastic today. She was alert and interested and in a much better mood than the last few days. She seems to respond beautifully to the CPAP. Now we just need to find a way to get that result at home.

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