Three Weeks!

Grace is 3 weeks old today. Hard to believe how much she has changed and grown. Unfortunately, this little celebration lands on the day that she gets her head ultrasound and we always seem to get bad news. It is no different today.
While her ventricles are a little bigger and might be a problem, the most concerning new finding is damage to the white matter in the brain. This is known as PVL (peri-ventricular leukomalacia) and is very strongly associated with cerebral palsy (CP). It does not bode well for Grace's long-term outcome. To put it mildly, we are heartbroken for her. She can't seem to catch a break. Every complication that can happen has happened and her prognosis for a functional outcome dwindles with each new piece of bad news. I try to find a positive note in these posts, but today it is just beyond me.