I am always nervous when Grace has more tests. We are always worried that we will get more bad news. Tomorrow she get a study of her bladder and ureters. You may recall from an earlier post that she has some ureteral reflux where the valves at the junction of the ureters and bladders are not preventing the urine from flowing the wrong way. Because of this she is on antibiotics to decrease the risk of a kidney infection. Urine is only supposed to flow one way ya know. Tomorrow they will evaluate this a little further.
We also had the definitive word (for now) about Grace's omphalocele. The surgeons are not planning on fixing it until she is about one year of age. That is not a problem for us. Clothes will be hard to fit for a while, but I imagine the repair will be easier both for her and the surgeons when she is bigger.
Deb and I are starting to get checked off on skills that we will need to take Grace home. I placed her nasogastric tube tonight. We both have to do it twice. Deb has done it already, so we both have one down. Grace is not big on the idea, however, and was p****d off about the whole thing. It is nice to hear her give a big strong cry sometimes. Very life affirming.
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